Question: What are the odds of getting CIDP?

CIDP is a rare disorder that can affect any age group and the onset of the disorder may begin during any decade of life. CIDP affects males twice as often as females and the average age of onset is 50. The prevalence of CIDP is estimated to be around 5-7 cases per 100,000 individuals.

What percentage of the population has CIDP?

Although CIDP is the most common treatable chronic neuropathy worldwide, it is still a rare disease. CIDP has an estimated incidence of 0.7 to 1.6 cases per 100,000 persons per year. The overall prevalence is estimated at 4.8 to 8.9 cases per 100,000 persons.

What does CIDP feel like?

The most common symptoms of CIDP are weakness, numbness, and tingling in the legs, arms, fingers, and hands. Other symptoms include fatigue, pain, balance issues, and impairment of your ability to walk. Some people have described feeling as if there were an electrical storm in their arms or legs.

Can CIDP cause death?

Chronic inflammatory demyelinating polyradiculoneuropathy most commonly has an insidious onset and either chronic progressive or relapsing course. Occasionally, complete remissions occur. Quadriplegia, respiratory failure, and death have been described but are rare.

Can CIDP go away on its own?

Unlike Guillain Barré syndrome, CIDP does not automatically go away. Although patients in the past could, over time, become very weak to the point where they required a wheel chair, currently available treatment insures that 90% of patients are able to walk without aid and enjoy an active life.

How painful is CIDP?

proved non-effective for pain and is not recommended going forward. Similarly, 40 percent of CIDP patients noted an increased intensity of pain, and in many cases, consider it severe. However, location of pain remained virtually the same as with GBS patients.

What does CIDP pain feel like?

The most common symptoms of CIDP are weakness, numbness, and tingling in the legs, arms, fingers, and hands. Other symptoms include fatigue, pain, balance issues, and impairment of your ability to walk. Some people have described feeling as if there were an electrical storm in their arms or legs.

Feel free to grab a flair and share or vent! See the for helpful information about the disease, stories from survivors, and links to external resources.

What Is CIDP?

Remember, always seek a medical professional for accurate diagnosis - this is a place for support, education and information, and we cannot diagnose anyone over the internet. I don't think they do, pretty sure there hasn't been a single study looking into that please correct me if I'm wrong. I feel like I am trying to not be mad about their statement but it does make me mad.

It has nothing to do with us and everything to do with the general population, but that is not what this foundation is supposed to be for.

What are the odds of getting CIDP? have no evidence to prove or disprove that so they shouldn't even be remotely suggesting it is fine. They need to state that they don't have the data, and they probably never will. I don't know how many of us would willingly participate in a study just to find that out.

Not after going through this one or more times. I do already know that I will not be getting the vaccine, at least not until there is more information on it. I have no issue with vaccinations, I get all my shots except for the flu shot because the benefit typically outweighs the risk.

At War with Myself: My CIDP Story and Healing Naturally

Though I agree, it is always important to discuss this with your doctor. What is unfortunate for me is my primary care decided to retire in the middle of the pandemic. Don't blame her, I definitely get it. Though it kind of sucks because I've had the same primary care since I was 16.

What are the odds of getting CIDP?

She knew my entire history and I trusted her opinion. Need to find a new one, which is a bit daunting in the middle of a pandemic. I had an upper respiratory virus and that is what the doctors think triggered it.

Both times I developed it I was completely paralyzed and couldn't even blink. The likelihood of it reoccurring is very very low, so you probably have nothing to What are the odds of getting CIDP? about and I hope you never get it again. I have a lot of anxiety about it, but I try not to let that get in the way of living my life. With Covid that anxiety has definitely increased and I don't like these general statements released when they don't have data to back it up.

My doctors have dismissed this completely and told me to suck it up. Any advice on how to deal with the anxiety that makes a comeback each time I feel even the slightest tingle in my throat? I have had very similar experiences with the phantom pains and tingling which has caused some serious panic attacks.

I was completely paralyzed within 48 hours both times. So with me if I can still feel below my ankles at the end of the day the anxiety diminishes.

What are the odds of getting CIDP?

What makes the anxiety worse is that I can't feel parts of my feet still and they tingle a little now in certain spots. There are a few things that have What are the odds of getting CIDP?. I take anxiety medication now and take something specific if I'm feeling extra anxious.

It honestly has helped keep me level headed. I draw, paint, play music and really sing along to it, play a video game, do something athletic, find people to hangout with, literally anything that will pull my mind away from focusing on myself.

I've had trouble sleeping because of this also, that is when I tend to focus on it the most. I ended up turning on a tv show I've seen a thousand times The Office to give my mind something else to focus on, but don't necessarily need to pay attention to and can close my eyes and drift off.

What are the odds of getting CIDP?

I don't really drink anymore, maybe a glass of wine every so often. I know I have anxiety, and the last time I even got remotely tipsy I turned into a blubbering mess. That seems to make it worse so I mostly just stopped doing it. People have always told me I should talk to a therapist, but I personally don't think I will benefit from that.

For me, things have gotten better. Out of everything I think taking up a new hobby helped the most.

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